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1. rarerevolutionmagazine.comHome of Rare Disease Education

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   28. Mai 2024 · SMA Europe launches “real-life stories” to show how access to treatment and care impacts people living with spinal muscular atrophy. Home of Rare Disease information and education on rare and genetic disorders and cancers directly from patients and medical professionals.

2. ir.ultragenyx.comInvestors & Media—Ultragenyx Pharmaceutical Inc.

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   14. Mai 2024 · Investors & Media. Leading with purpose. Every day. Ultragenyx is a biopharmaceutical company committed to bringing to patients novel products for the treatment of serious rare and ultra-rare genetic diseases. The company has built a diverse portfolio of approved therapies and product candidates aimed at addressing diseases with high unmet ...

3. www.iarc.who.int › iarc-marks-rare-cancer-day-2022IARC marks Rare Cancer Day 2022 – IARC - International Agency for...

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   22. Mai 2024 · Rare cancers are cancer types with fewer than 6 newly diagnosed cases per 100 000 people per year. Individually, none of these cancer types are major causes of disease. However, taken as a whole, rare cancers account for about 25–30% of all cancer diagnoses and 25% of cancer deaths. Despite the high collective occurrence of rare cancers, basic biological and clinical knowledge is lacking.

4. global.chinadaily.com.cn › a › 202203Report: insurance coverage for rare disease patients can still be...

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   22. Mai 2024 · The report, which looked into 151 insurance products from 27 provinces, was jointly released by Beijing-based Illness Challenge Foundation, a public welfare foundation focusing on rare disease field, and the Research Center for Health Economics and Medical Insurance of Nankai University in Shanghai on Saturday ahead of the International Rare Disease Day, which falls on Feb 28 each year.

5. www.sobi.comSobi - Transforming the lives of people with rare diseases

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   14. Mai 2024 · Focus on Rare Diseases More than 7,000 rare diseases have been identified, with more being discovered every day. While many rare diseases are very uncommon, together they affect 350 million people worldwide.

6. iasbaba.com › rapid-revision-series-rareRapid Revision Series (RaRe) Archives | IASbaba

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   9. Mai 2024 · Rapid Revision Series (RaRe) Showing 1-20 out of 335. [DAY 60] 60 DAY RAPID REVISION (RaRe) SERIES for UPSC Prelims 2024 – ENVIRONMENT, CURRENT AFFAIRS & CSAT TEST SERIES! IASbaba. May 11, 2024. IASbaba Prelims 60 Days Plan, Rapid Revision Series (RaRe) [DAY 59] 60 DAY RAPID REVISION (RaRe) SERIES for UPSC Prelims 2024 – SCIENCE AND ...

7. link.springer.com › journal › 44162Articles | Journal of Rare Diseases - Springer

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   13. Mai 2024 · JORD Editor-in-Chief’s welcome: rare diseases from science to practice. Neveen A. Soliman. Editorial Open access 07 December 2022 Article: 1. Journal of Rare Diseases is an open access, peer reviewed journal with clinical and basic research interests in rare and genetic diseases.