Suchergebnisse
Suchergebnisse:
16. Mai 2024 · WASHINGTON, D.C., May 16, 2024, Today, the House of Representatives’ Energy and Commerce Health Subcommittee voted to advance several bipartisan bills important to the rare disease community, two of which encourage rare disease drug development and two that would make it easier for many rare disease patients to access necessary care.
14. Mai 2024 · Focus on Rare Diseases More than 7,000 rare diseases have been identified, with more being discovered every day. While many rare diseases are very uncommon, together they affect 350 million people worldwide.
6. Mai 2024 · Launch of the Nordic Rare Disease Summit 2023. October 17, 2022. Event Recap – Alexion’s Rare Disease Policies (13 October 2022) October 3, 2022. Event Report: The revision of the EU legal framework for orphan drugs and its impact on Germany. June 24, 2022. Event Recap: ‘The Future of Rare Diseases in Europe & Czech Republic’ Webinar ...
25. Mai 2024 · Data via the congress project . Dec 22, 2022. H.R. 9676 (117th). To expand and improve the programs and activities of the Department of Health and Human Services for awareness, education, research, surveillance, diagnosis, and treatment concerning rare diseases and conditions. In GovTrack.us, a database of bills in the U.S. Congress.
14. Mai 2024 · since its inception in June 2022, there have been 15 rare disease treatments (non-cancer orphan drugs) entering the NICE process that were potentially eligible for the Innovative Medicines Fund (IMF).
13. Mai 2024 · SIOP Europe 2024. 05/13/2024. SIOP Europe - 5th Annual Meeting of the European Society for Paediatric Oncology, Milan, Italy 13 – 17 May 2024 For more information, click here.
22. Mai 2024 · The report, which looked into 151 insurance products from 27 provinces, was jointly released by Beijing-based Illness Challenge Foundation, a public welfare foundation focusing on rare disease field, and the Research Center for Health Economics and Medical Insurance of Nankai University in Shanghai on Saturday ahead of the International Rare Disease Day, which falls on Feb 28 each year.
