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15. Mai 2024 · Rare Disease Day is marked on 28 February each year. Taken individually, none of these cancer types are major causes of disease. However, taken as a whole, rare cancers account for about 25–30% of all cancer diagnoses and 25% of cancer deaths, representing a substantial burden of disease.
16. Mai 2024 · 16 May 2024, Paris – EURORDIS-Rare Diseases Europe has released findings from an extensive Rare Barometer survey highlighting the prolonged and inequitable diagnostic journeys faced by rare disease patients right across Europe.
Vor 5 Tagen · Rare Disease Day 2022: IARC highlights the burden of rare cancers – IARC (who.int) (viewed in April 2024) Crooke S. Progress in molecular biology and translational science addressing the needs of nano-rare patients – ScienceDirect https://alliance-maladies-rares.org/nos-combats/ [not available in English]
22. Mai 2024 · Rare Disease Day 2022: IARC highlights the burden of rare cancers – IARC. 28 Février 2022. Lung cancer Mesothelioma. Rare Disease Day 2022: IARC highlights the burden of rare cancers. Other news. View all. IARC marks European Week Against Cancer 2024.
Vor 4 Tagen · 2022 RARE Patient Advocacy Summit. The Summit forged meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies they ...
Vor 6 Tagen · Open Access Published: May 29, 2024 DOI: https://doi.org/10.1016/S2214-109X (24)00219-5. The Editorial on the landscape for rare diseases in 2024 offered insight into the challenges faced by people living with a rare disease, highlighting the need for collective action to address their unmet needs. One key issue is the stigma ...
21. Mai 2024 · Feb 28 2022. by Prof. Prof. Raghu Padinjat and Sonal Katyal. On the Rare Disease Day, we approached Prof. Raghu Padinjat, Cell biologist, Dean Research, NCBS-TIFR, to learn about his work on using stem cells to understand Lowe Syndrome. you may read his lab' research here: https://journals.biologists.com/bio/article/11/1/bio059066 ...
