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24. Mai 2024 · Each year, Feb 29 marks Rare Disease Day, a call to action for millions of people worldwide. However, in low-income and middle-income countries (LMICs), access to essential resources, information, and care remains severely restricted, exacerbating the unexplored burden of patients with rare diseases and their families.
15. Mai 2024 · Rare Disease Day is marked on 28 February each year. Taken individually, none of these cancer types are major causes of disease. However, taken as a whole, rare cancers account for about 25–30% of all cancer diagnoses and 25% of cancer deaths, representing a substantial burden of disease.
Vor einem Tag · Nicolas Lévy, Professor of Medical Genetics, Scientific Director of Rare Diseases at Servier. “Today, 95% 12 of rare diseases do not yet have treatment in any area. This field holds great potential for medical innovation and research innovation in life and health sciences. And it is a great opportunity for researchers as well as for society ...
6. Mai 2024 · Our vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention
24. Mai 2024 · Rare Disease Day 2024: the IARC Rare Cancers Genomics Team. Rare cancers are cancer types with fewer than 6 newly diagnosed cases per 100 000 people per year. Although individually these cancer types occur rarely, taken together, rare cancer types account for about 25% of all cancer diagnoses.
Vor 3 Tagen · Home of Rare Disease information and education on rare and genetic disorders and cancers directly from patients and medical professionals.
Vor 9 Stunden · More than 1,600 people have signed a petition calling for greater awareness about Myasthenia Gravis (MG), a rare and often debilitating disease, and would like...