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1. elhks.de › en › rueckblick-rds24-tag1“Rethinking Rare”: Review of the 8th Rare Disease Symposium of...

   elhks.de › en › rueckblick-rds24-tag1

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   Vor 2 Tagen · The 8th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation focused on thinking ahead and thinking outside the box. Around 150 participants accepted the invitation to Berlin on May 3 and 4, 2024. Together with inspiring speakers, the wide range of rare diseases was discussed in order to address how the medicine of tomorrow can meet the special needs of those affected.

2. www.thelancet.com › journals › langloDigital solutions for rare diseases in global health - The Lancet

   www.thelancet.com › journals › langlo

   24. Mai 2024 · Each year, Feb 29 marks Rare Disease Day, a call to action for millions of people worldwide. However, in low-income and middle-income countries (LMICs), access to essential resources, information, and care remains severely restricted, exacerbating the unexplored burden of patients with rare diseases and their families.

3. rare2024.co.ukhome - Rare-UK

   rare2024.co.uk

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   29. Mai 2024 · The International Conference on the Science & Practice of Rare Diseases (Rare-UK), which will take place 28-29 May 2024 in London, UK.

4. www.rarediseasesinternational.org › event › europeanEuropean Conference on Rare Diseases and Orphan Products

   www.rarediseasesinternational.org › event › european

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   15. Mai 2024 · May 15 - May 16. The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe.

5. www.gov.uk › government › publicationsEngland Rare Diseases Action Plan 2024: main report - GOV.UK

   www.gov.uk › government › publications

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   14. Mai 2024 · Updated 14 May 2024. Applies to England. Ministerial foreword. In 2021 we published the UK Rare Diseases Framework, this set out priorities to address the needs of people living with rare...

6. www.pharmig-academy.at › 2024/05/07 › 15-rare-diseases-dialog15. RARE DISEASES DIALOG (07.05.2024) | PHARMIG ACADEMY

   www.pharmig-academy.at › 2024/05/07 › 15-rare-diseases-dialog

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   7. Mai 2024 · Wie das Bewertungsboard gestaltet und umgesetzt werden muss, damit Betroffene von seltenen Erkrankungen in ganz Österreich die passende medizinische Therapie erhalten können, steht im Zentrum des 15. Rare Diseases Dialogs.

7. ecrin.org › agenda › 12th-european-conference-rare-diseases12th European Conference on Rare Diseases & Orphan Products (ECRD...

   ecrin.org › agenda › 12th-european-conference-rare-diseases

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   15. Mai 2024 · The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national a...