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1. www.gov.uk › government › publicationsEngland Rare Diseases Action Plan 2024: main report - GOV.UK

   www.gov.uk › government › publications

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   14. Mai 2024 · Published 29 February 2024. Applies to England. Ministerial foreword. In 2021 we published the UK Rare Diseases Framework, this set out priorities to address the needs of people living with...

2. www.youtube.com › watchPowered by Purpose: Rare Disease Day 2024 - YouTube

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   Vor 4 Tagen · Rare Disease Day provides us with the opportunity to honor the global rare disease community – including the researchers, advocacy organizations, healthcare ...

   • Videolänge: 2 Min.

   • Autor: Insmed

3. Videos

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     youtube.com

     Rare Disease Day Official Video 2024

     20. Nov. 2023

     31.1K Aufrufe

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     facebook.com

     Rare Disease Day 2024

     21. Nov. 2023

     680 Aufrufe

   • 1:05

     youtube.com

     GFPD | Rare Disease Day February 29, 2024

     1. Feb. 2024

     3 Aufrufe

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4. www.rare-diseases.eu › programme-7Programme - ECRD2024 - European Conference on Rare Diseases

   www.rare-diseases.eu › programme-7

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   13. Mai 2024 · The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease. 13 MAY 2024. Organised by the Romanian National Alliance for RD. 15-16 MAY 2024. 12th Edition of the European Conference on Rare Diseases and Orphan Products. 27-28 MAY 2024. EJP RD Final Conference: Consolidating the Rare Disease Research Ecosystem.

5. www.eurordis.org › survey-reveals-lengthy-diagnostic-delaysMajor survey reveals lengthy diagnostic delays for rare disease...

   www.eurordis.org › survey-reveals-lengthy-diagnostic-delays

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   16. Mai 2024 · 16 May 2024, Paris – EURORDIS-Rare Diseases Europe has released findings from an extensive Rare Barometer survey highlighting the prolonged and inequitable diagnostic journeys faced by rare disease patients right across Europe.

6. rd-research.org.ukHomepage - Rare Disease Research UK

   rd-research.org.uk

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   17. Mai 2024 · Event: 1st Scientific Meeting of the MRC Rare Early Onset Lower Urinary Tract Disorder (REOLUT) Node May 17, 2024 Event: UK Platform for Nucleic Acid Therapies (UPNAT) Inaugural Symposium

7. Bilder

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8. www.rare-bz.net › news › undiagnosed-day-2024Undiagnosed Day 2024 | Rare

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   29. Apr. 2024 · Mo. 29.04.2024 350 Millionen Menschen weltweit leben mit einer unbenannten, d. h. nicht diagnostizierten, äußerst seltenen Krankheit. Der Undiagnosed Day 2024 - organisiert von UDNI (Undiagnosed Diseases Network International), UDNF (Undiagnosed Diseases Network Foundation) und der Wilhelm-Stiftung - wird mit einer internationalen ...

9. ecrin.org › agenda › 12th-european-conference-rare-diseases12th European Conference on Rare Diseases & Orphan Products (ECRD...

   ecrin.org › agenda › 12th-european-conference-rare-diseases

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   15. Mai 2024 · Brussels & online. 15/05/2024 - 16/05/2024. The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow ...