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  1. rarediseases.org › rare-disease-dayRare Disease Day 2024 - Join Us On February 29 | NORD

    Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 29th, the rarest day of the year. The National Organization for Rare Disorders (NORD) is the trusted voice of the more than 30 million Americans ...

  2. elhks.de › vielfaeltige-aktionen-zum-rare-disease-day-2022Vielfältige Aktionen zum Rare Disease Day 2022

    Vielfältige Aktionen zum Rare Disease Day 2022. Seit 2008 setzt der Rare Disease Day am letzten Tag im Februar ein Zeichen für die weltweit 300 Millionen Menschen mit Seltenen Erkrankungen. Wir alle sind eingeladen und aufgefordert, uns an den vielfältigen Aktionen zu beteiligen, die von Betroffenen, den sie vertretenden Organisationen und ...

  3. download2.rarediseaseday.org › 2022 › campaign_materialsINFORMATION PACK - Rare Disease Day 2023

    INFORMATION PACK. What is rare disease day? Rare Disease Day is the official international awareness-raising campaign for rare diseases which takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients ...

  4. www.fda.gov › fda-rare-disease-day-2022FDA Rare Disease Day 2022 - U.S. Food and Drug Administration

    6. Apr. 2022 · On March 4, 2022, FDA joined the global observance of Rare Disease Day, which was created to raise awareness about the 7,000 known rare diseases, many of which have no treatment.

  5. www.wewearstripes.com#WeWearStripes | Rare Disease Day 2022

    Rare Disease Day Official Video 2022. Your support has made the creation of this incredible mosaic possible. You did not only prove the power of unity, but you also helped Chiesi Global Rare Diseases and Make-A-Wish International make the dreams of kids affected by rare or severe diseases come true.

  6. www.rarediseaseday.org › what-is-rare-disease-dayWhat is Rare Disease Day? - Rare Disease Day 2025

    Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

  7. www.immundefekte.info › 02Meldung: Rare Disease Day 2022: Share your Colours!

    7. Feb. 2022 · Das sind die Eckdaten des Rare Disease Day 2022. Der Rare Disease Day oder auch „Tag der seltenen Erkrankungen“ genannt, ist bestens dazu geeignet, ein Zeichen in der öffentlichen Wahrnehmung für Menschen, die von seltenen Erkrankungen betroffen sind, zu setzen. In diesem Jahr lautet das Motto „Share your colors“.