Oft genetisch bedingt und medizinisch komplex. Unser Beitrag zeigt Ihnen alles Wichtige! Welche seltenen Erkrankungen gibt es? Erhalten Sie Definition, Zahlen und Beispiele.
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Join the global campaign to raise awareness and generate change for the 300 million people living with a rare disease. Share your colours, stories, events and materials on 28 February or any day of the year.
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Erfahre, wie du am 28. Februar mitmachen kannst, um die Seltenen sichtbarer zu machen und die Versorgung zu verbessern. Folge dem Instagram Kanal @selten_bewegt, mach mit der High5-Aktion und spende für die ACHSE e.V.
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. [1] [2] [3] [4] [5] [6] The date is chosen because in leap years it is February 29, the rarest date.
Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. Learn how to #ShowYourStripes, share your story, light up for rare, and take action with NORD, the official U.S. partner for Rare Disease Day.
Germany. In Germany, Rare Disease Day was first celebrated in 2009. The day has garnered support from Mr. Hermann Gröhe, former minister of health; Ms. Johanna Wanka, minister of research; and the former German First Lady Eva Luise Köhler.
31. Jan. 2022 · 31 January 2022. Today is the launch of the official Rare Disease Day 2022 video in over 40 languages! This video kicks off the international patient-led campaign and shines a light on the diverse community of over 300 million people living with a rare disease. Watch it now in:
