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  1. Oft genetisch bedingt und medizinisch komplex. Unser Beitrag zeigt Ihnen alles Wichtige! Welche seltenen Erkrankungen gibt es? Erhalten Sie Definition, Zahlen und Beispiele.

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  1. 28. Feb. 2024 · Rare Disease Day is a global campaign to raise awareness and generate change for the 300 million people living with a rare disease. Learn about the stories, events, materials and partners of this year's edition.

    • What is Rare Disease Day

      Rare Disease Day is the globally-coordinated movement on...

    • Events near you

      What is Rare Disease Day? Previous Rare Disease Days;...

    • Join

      What is Rare Disease Day? Previous Rare Disease Days;...

    • News

      In the run up to Rare Disease Day 2022, we gathered a team...

    • What is a rare disease

      Rare Disease Day is the opportunity to advocate for rare...

    • Downloads

      You are invited to light or decorate your home with the Rare...

    • Our Heroes

      Be part of Rare Disease Day by sharing your story with...

    • Post your event

      I would like to receive news from Rare Disease Day. Share...

  2. Rare Disease Day ist ein internationaler Aktionstag, der am 28. Februar die Seltenen sichtbar macht und die Versorgung verbessert. Erfahre mehr über Seltene Erkrankungen, die Zebra-Leitspruch, die Pfizer-Therapien und wie du mitmachen kannst.

  3. Germany. In Germany, Rare Disease Day was first celebrated in 2009. The day has garnered support from Mr. Hermann Gröhe, former minister of health; Ms. Johanna Wanka, minister of research; and the former German First Lady Eva Luise Köhler. An annual award, the Eva Luise Köhler Research Award, recognises researchers and health care ...

  4. 20. Apr. 2024 · Rare Disease Day is a global initiative to raise awareness and support for people with rare diseases. Learn how to #ShowYourStripes, share your story, light up for rare, and join the advocacy network with NORD, the official US partner.

  5. Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. [1] [2] [3] [4] [5] [6] The date is chosen because in leap years it is February 29, the rarest date.

  6. 21.02.2023 - Rare Disease Day 2023. ACHSE ruft auf: Farbe bekennen und so ein Zeichen für Menschen mit Seltenen Erkrankungen setzen – denn „Selten sind Viele“; vielfältige Aktionen rund um den internationalen Aktionstag Ende Februar laden zum Mitmachen ein. Am 28. Februar 2023 ist der 16.