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1. ncats.nih.gov › news-events › newsRare Disease Day at NIH 2024: Showcasing Voices and New...

   ncats.nih.gov › news-events › news

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   23. Apr. 2024 · On Feb. 29, 2024 — the rarest day of the year — patients, clinicians, researchers, drug developers and advocates traveled to the NIH main campus or tuned in to NIH VideoCast for Rare Disease Day (RDD) at NIH. More than 2,000 people attended RDD at NIH. Co-sponsored by NCATS and the NIH Clinical Center, the annual event raises ...

2. globalgenes.org › story › what-being-undiagnosed-means-in-theWhat Being Undiagnosed Means in the Rare Community

   globalgenes.org › story › what-being-undiagnosed-means-in-the

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   24. Apr. 2024 · April 24, 2024. April 29 is Undiagnosed Disease Day, and Global Genes reached out to the Undiagnosed Disease Network Foundation (UDNF) to share how they help those seeking a diagnosis. Gerald Sweeney serves on the board of directors for the Undiagnosed Diseases Network Foundation.

3. rarerevolutionmagazine.comHome of Rare Disease Education

   rarerevolutionmagazine.com

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   6. Mai 2024 · 2 May 2024. rarerevolutionmagazine. Home of Rare Disease information and education on rare and genetic disorders and cancers directly from patients and medical professionals.

4. irdirc.orgIRDiRC – International Rare Diseases Research Consortium

   irdirc.org

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   6. Mai 2024 · May 6, 2024. Welcome to the pinnacle event in rare diseases research, the RE (ACT) Congress and….

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5. www.iarc.who.int › fr › news-eventsRare Disease Day 2024: the IARC Rare Cancers Genomics Team

   www.iarc.who.int › fr › news-events

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   24. Apr. 2024 · Rare Disease Day 2024: the IARC Rare Cancers Genomics Team. Rare cancers are cancer types with fewer than 6 newly diagnosed cases per 100 000 people per year. Although individually these cancer types occur rarely, taken together, rare cancer types account for about 25% of all cancer diagnoses.

6. Videos

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     youtube.com

     Rare Disease Day Official Video 2024

     20. Nov. 2023

     31K Aufrufe

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     facebook.com

     Rare Disease Day 2021 Official Video

     5. Feb. 2021

     10.9K Aufrufe

   • 2:52

     youtube.com

     Rare Disease Day Official Video 2022

     31. Jan. 2022

     25.6K Aufrufe

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7. rarediseases.org › resource-libraryResources Archive - National Organization for Rare Disorders

   rarediseases.org › resource-library

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   29. Apr. 2024 · Rare Disease Day. Resource Library. State Resource Center. Publications On Rare Disease. Patient stories. Christina’s Lease on Life. Read More. Living with a Rare Disease. Manage your care. Getting Help & Support. Managing Your Disease. We can help. How NORD Can Help. Speak To Someone at NORD. Rare Disease Centers Of Excellence.

8. www.ppd.com › rare-disease › recognizing-rare-disease-dayRecognizing Rare Disease Day | PPD

   www.ppd.com › rare-disease › recognizing-rare-disease-day

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   2. Mai 2024 · February is the rare disease awareness month. This is the month where we honor the patients and families who fight everyday a terrible disease. Rare diseases are not that “rare” since they impact ~10% of the US population. We recognize and join the fight with patients and families to find new treatments for rare diseases. Please ...

9. Bilder

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