Yahoo Suche Web Suche

Anmelden
  1. www.vfa.de/seltene/erkrankungen

    AnzeigeSeltene Erkrankungen - Seltene Erkrankungen - vfa

    Oft genetisch bedingt und medizinisch komplex. Unser Beitrag zeigt Ihnen alles Wichtige! Welche seltenen Erkrankungen gibt es? Erhalten Sie Definition, Zahlen und Beispiele.

    Seltene Erkrankungen werden mit Orphan Drugs behandelt.

Suchergebnisse

  1. Suchergebnisse:

  1. www.eucope.org › rare-disease-hubEUCOPE's Rare Disease Hub | EUCOPE AISBL

    6. Mai 2024 · Launch of the Nordic Rare Disease Summit 2023. October 17, 2022. Event Recap – Alexion’s Rare Disease Policies (13 October 2022) October 3, 2022. Event Report: The revision of the EU legal framework for orphan drugs and its impact on Germany. June 24, 2022. Event Recap: ‘The Future of Rare Diseases in Europe & Czech Republic’ Webinar ...

  2. www.astrazeneca.com › investor-relations › results-andResults and presentations - AstraZeneca

    25. Apr. 2024 · Full Year and Q4 2022 results clinical trials appendix. PDF 2,454KB Full Year and Q4 2022 results: Pascal Soriot, CEO. Video . J.P. Morgan 41st Annual Healthcare Conference. 9 January 2023. Presentation. PDF 5,234KB 2022. Meet AZN manage ...

  3. www.iarc.who.int › iarc-marks-rare-cancer-day-2022IARC marks Rare Cancer Day 2022 – IARC - International Agency for...

    25. Apr. 2024 · Rare cancers are cancer types with fewer than 6 newly diagnosed cases per 100 000 people per year. Individually, none of these cancer types are major causes of disease. However, taken as a whole, rare cancers account for about 25–30% of all cancer diagnoses and 25% of cancer deaths. Despite the high collective occurrence of rare cancers, basic biological and clinical knowledge is lacking.

  4. globalgenes.org › event › rare-disease-drugRare Drug Development Symposium - Global Genes

    30. Apr. 2024 · The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers.

  5. rarediseases.org › rare-diseases › spinal-muscular-atrophySpinal Muscular Atrophy - Symptoms, Causes, Treatment | NORD

    17. Apr. 2024 · The signs and symptoms of SMA are a consequence of lower motor neuron loss. The features of lower motor neuron disease include muscle weakness and atrophy, hypotonia, decreased or absent reflexes (hypo- or areflexia) and twitching of muscle fibers (fasciculations). Although SMA is a disease spectrum, the five subtypes are determined based on ...

  6. rarediseases.org › newsRare Disease News - National Organization for Rare Disorders

    Vor 5 Tagen · National Organization for Rare Disorders (NORD) Names Pamela K. Gavin as CEO; Peter L. Saltonstall Retires and Will Serve in Consultative Role. QUINCY, MA, May 1, 2024—The National Organization for Rare Disorders (NORD) announced today that Pamela K. Gavin has been named CEO effective immediately. She succeeds Peter L. Saltonstall who ...

  7. www.iarc.who.int › fr › news-eventsRare Disease Day 2024: the IARC Rare Cancers Genomics Team

    24. Apr. 2024 · Rare cancers are cancer types with fewer than 6 newly diagnosed cases per 100 000 people per year. Although individually these cancer types occur rarely, taken together, rare cancer types account for about 25% of all cancer diagnoses. The lack of data on rare cancers results in slow progress in understanding the biology of these tumours. This contributes to poorer outcomes: the 5-year overall ...