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28. Feb. 2024 · Join the Countdown: Rare Disease Day 2024 Starts Now. EURORDIS has received funding for this website under an operating grant from the European Union’s Health Programme (2021-2027). Views and opinions expressed on this website are however those of the author (s) only and do not necessarily reflect those of the European Union or HaDEA.
- What is Rare Disease Day
Rare Disease Day is the globally-coordinated movement on...
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What is Rare Disease Day? Previous Rare Disease Days;...
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In the run up to Rare Disease Day 2022, we gathered a team...
- What is a rare disease
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- What is Rare Disease Day
Am 28. Februar ist Rare Disease Day! Zu den Zielen dieses Aktionstages zählt es, die Seltenen sichtbarer zu machen und die Versorgung von Patient:innen zu verbessern. Und du kannst sie unterstützen! Erfahre hier wie das geht!
20. Nov. 2021 · Today marks the launch of the global awareness campaign for the over 300 million people living with a rare disease worldwide – 100 days ahead of Rare Disease Day which will take place on 28 February 2022. EURORDIS-Rare Diseases Europe and over 60 National Alliance patient organisation partners invite everyone to join us in bringing ...
Event Summary. For the 15th edition of Rare Disease Day, more than 100 countries and regions joined their voices, organizing more than 600 different kinds of events all around the world. This year’s campaign saw 5 new National Alliance partners: Ivory Coast, Kenya, Greece, Kazakhstan and Portugal.
#RArEDISEASeDAY. RARE DISEASE DAY 2022. INFORMATION PACK. What is rare disease day? Rare Disease Day is the oficial international awareness-raising campaign for rare diseases which takes place on the last day of February each year.
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28. Feb. 2022 · RARE DISEASE DAY 2022. 28.02.2022. Setzen Sie ein Zeichen. 50.000 Stimmen für eine solide Finanzierung der Zentren für Seltene Erkrankungen. In Deutschland leben ca. 4 Millionen Menschen mit einer seltenen Erkrankung. Etwa 70 % der Betroffenen leiden bereits im Kindes- oder Jugendalter an den Symptomen.
beteiligen sich heute Menschen in über 100 Ländern. Seit 2020 steht der Rare Disease Day unter dem Motto “Selten sind Viele. Gemeinsam sind wir stark und selbstbewusst.” Farbe bekennen 2022 Als anerkannte deutsche Allianz im internationalen Netzwerk koordiniert die ACHSE den Tag der Seltenen Erkrankungen seit 2008 in Deutschland, veran-
