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28. Feb. 2024 · 28 February is Rare Disease Day. Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Share your colours Download materials. 316. days. to go. Rare Disease Day Official Video 2024. Watch on. 300M. people with rare diseases. 600+. events worldwide. 106. countries involved
- What is Rare Disease Day
Rare Disease Day is the globally-coordinated movement on...
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In the run up to Rare Disease Day 2022, we gathered a team...
- What is a rare disease
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- What is Rare Disease Day
Am 28. Februar ist Rare Disease Day! Zu den Zielen dieses Aktionstages zählt es, die Seltenen sichtbarer zu machen und die Versorgung von Patient:innen zu verbessern. Und du kannst sie unterstützen! Erfahre hier wie das geht!
20. Nov. 2021 · Today marks the launch of the global awareness campaign for the over 300 million people living with a rare disease worldwide – 100 days ahead of Rare Disease Day which will take place on 28 February 2022. EURORDIS-Rare Diseases Europe and over 60 National Alliance patient organisation partners invite everyone to join us in bringing ...
Event Summary. For the 15th edition of Rare Disease Day, more than 100 countries and regions joined their voices, organizing more than 600 different kinds of events all around the world. This year’s campaign saw 5 new National Alliance partners: Ivory Coast, Kenya, Greece, Kazakhstan and Portugal.
#RArEDISEASeDAY. RARE DISEASE DAY 2022. INFORMATION PACK. What is rare disease day? Rare Disease Day is the oficial international awareness-raising campaign for rare diseases which takes place on the last day of February each year.
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Am Montag, dem 28. Februar 2022 war wieder der Rare Disease Day 2022, der Tag der Seltenen Erkrankungen. Der Rare Disease Day 2022 stand unter dem Motto "Seltene Erkrankungen (be-)greifen". In Deutschland leben rund 4 Millionen Kinder und Erwachsene mit einer der etwa 8.000 Seltenen Erkrankungen.
7. Feb. 2022 · Am 28. Februar 2022. Das sind die Eckdaten des Rare Disease Day 2022. Der Rare Disease Day oder auch „Tag der seltenen Erkrankungen“ genannt, ist bestens dazu geeignet, ein Zeichen in der öffentlichen Wahrnehmung für Menschen, die von seltenen Erkrankungen betroffen sind, zu setzen. In diesem Jahr lautet das Motto „Share your colors“.
