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  1. Rare Disease Day (世界希少・難治性疾患の日、以下RDD)は、より良い診断や治療による希少・難治性疾患の患者さんの生活の質(QOL)の向上を目指して、スウェーデンで2008年から始まった活動です。現在は述べ100カ国でRDDが開催されています。日本では、2010年の東京開催を皮切りにして、毎年 ...

  2. 28. Feb. 2022 · Die mehr als 30 Zentren für Seltene Erkrankungen (ZSE) in Deutschland sind für viele Patientinnen und Patienten der einzige Ort, an dem sie kompetent unterstützt werden. Wir setzen uns für eine solide Finanzierung dieser Zentren durch die Krankenkassen ein. Deshalb starten wir im Rahmen des RARE Disease Day am 28. Februar 2022 eine Petition ...

  3. The day also included an open session of the European Parliament specifically dedicated to discussing policy issues relating to rare diseases. The days leading up to Rare Disease Day included other policy-related events in numerous locations, such as a reception in the British Parliament where policymakers met with individuals with rare ...

  4. rarediseasegenomics.org › blog › rare-disease-day-2022Rare disease day 2022

    28. Feb. 2022 · Rare disease day 2022. Today, Monday 28th February 2022, is rare disease day: a globally-coordinated and patient-led movement to raise awareness of the 300 million people across the world living with a rare disease, as well as their families and carers. Find out more here.

  5. 26. Feb. 2022 · The even is on Saturday 26th Feb 2022 at Expo 2020 Dubai – Wasl Dome from 11 am – 3 pm. The event is open to the public audience with special invitations for families and rare disease patients. The program includes an interactive general awareness session on rare diseases for the public audience, special appearance of Mayed and Meera, the ...

  6. www.rarediseaseday.org › event › rare-disease-day-at-nih-2022Rare Disease Day 2022 at NIH

    28. Feb. 2022 · 28 February 2022 . Virtual, United States. Description. Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new tr ...