Suchergebnisse
Suchergebnisse:
3 of 10. Children with a Rare Disease Won’t Live to See Their 5th Birthday. Search the RARE List. For more resources, disease-specific information, and news, search our RARE List- an extensive list of rare diseases and rare conditions. Search Our Full RARE List. Rare Concierge.
Vor 4 Tagen · 2022 RARE Health Equity Summit. The RARE Health Equity Forum, hosted in partnership with the Rare Disease Diversity Coalition (RDDC) convenes rare disease stakeholders to identify collaborative efforts to address inequities in the care of patients with rare diseases.
15. Apr. 2024 · Rare Disease Day is marked on 28 February each year. Taken individually, none of these cancer types are major causes of disease. However, taken as a whole, rare cancers account for about 25–30% of all cancer diagnoses and 25% of cancer deaths, representing a substantial burden of disease.
25. Apr. 2024 · Rare Disease Day 2022: IARC highlights the burden of rare cancers. Other news. View all. IARC at the International Congress on Occupational Health 2024. Researchers from the International Agency for Research on Cancer (IARC) will present during the 3... 26.04.2024.
16. Apr. 2024 · On Rare Diseases Day 2024, the European Parliament’s Subcommittee on Public Health (SANT) heard strong voices of support from MEPs for urgent EU-wide action on rare diseases. The European Parliament in its Resolution on the EU public health strategy in the post COVID-19 era also called for a European Action Plan on rare and ...
22. Apr. 2024 · Rare Disease Day 2022 - In conversation with Prof. Raghu Padinjat. On the Rare Disease Day, we approached Prof. Raghu Padinjat, Cell biologist, Dean Research, NCBS-TIFR, to learn about his work on using stem cells to understand Lowe Syndrome. you may read his lab' research here: https://journals.biologists.com/bio/article/11/1 ...
Vor 2 Tagen · QUINCY, MA, May 1, 2024—The National Organization for Rare Disorders (NORD) announced today that Pamela K. Gavin has been named CEO effective immediately. She succeeds Peter L. Saltonstall who announces … Read more. The Surreal Reality of Being Undiagnosed: Lori’s Story in Honor of Undiagnosed Day. Published April 29, 2024 by NORD. Categorized in -
